Books that may help

Your Premature Baby 0-5 years by Nikki Bradford
ISBN 0-7112-1614 -2 Price 9.99

When a Baby Dies The experience of late miscarriage, stillbirth and neonatal death by Nancy Kohner & Alix Henley Published by Routledge
Available via order from WHSmiths quote ISBN number ISBN 0-415-25276-8 No price available at this time.

Between Two Eternities Sauls Story by Rosemary Kay Published by Headline books
Available via order from WHSmiths quote ISBN number ISBN 0-7472-7489-4 Price 12.99

Kangaroo Care.
A helpful booklet by Kathy Sleath, the neonatal nursing sister who pioneered kangaroo care in Britain.
2.00 incl. p&p from BLISS

Developmental Care of the Premature Baby by Janine Young Published by Balliere Tindall
1996 but currently being updated.
Looks at the effects of positioning, light, sounds, handling etc. Aimed at neonatal staff but straightforward to read.

For Older Brother & Sisters
Special Care Babies by Althea (available from BLISS, 1.50 plus p&p),
An illustrated story for young children about having a premature brother or sister in special care. Includes simple drawings of the neonatal unit and gentle explanations of what happens when a baby is in special care.


Parenting Your Premature Baby and Child: The Emotional Journey
by Deborah L. Davis and Mara Tesler Stein.

"The premature birth of your child tosses you and your family into a whirlwind of emotions, where it seems you will never touch down. Davis and Stein provide an exemplary map to the roller coaster ride you have embarked upon - from the first shock of the news and sight of your newborn child to the roller coaster ride in the NICU and on to the peaks and valleys of your time at home. Topics include the emotional implications of early delivery, physical recovery, the NICU experience, settling in at home, development and growth, caregiver challenges, special needs, moving on, subsequent pregnancies and much more. The authors' thoughtful analysis and advice are backed by heart-felt quotes from experienced parents in the Preemie Child and Preemie-L support groups, which will surely touch your heart. I don't think there is one aspect of the emotional journey of preemie parenting that they have left untouched - if you can feel it, it is here! Highly recommended for anyone who loves a preemie.

Coming to Term : A Father's Story of Birth, Loss, and Survival
by William H., Jr. Woodwell

"A father's first hand account of the premature birth of his daugher, and her subsequent four month experience in the hospital's Neonatal Intensive Care Unit... We experience the events of prematurity - ventalitation, infections, first bath, and finally transfer to a step down hospital in preparation for the homecoming."

Small Victories - Conversations about Prematurity, Disability, Vision Loss, and Success
Mary Lou Dickerson

"An amazing collection of the life stories of people who where born prematurely and are now adults... It is a unique book that deserves a place on the bookshelf of anyone interested in the life time effects of prematurity."

The Preemie Parents' Companion : The Essential Guide to Caring for Your Premature Baby in the Hospital, at Home, and Through the First Years.
By Susan L. Madden

"Susan L. Madden takes the cherished role of an informed friend she guides you from your earliest meeting with your child in the NICU through the transition of your child's first year at home."

Your Premature Baby and Child : Helpful Answers and Advice for Parents
Amy E. Tracy, Dianne I. Maroney

"This book is an essential resource for every parent of a premature baby - it continues the story of caring for your premature baby from the point where other books stop."

Special Children, Challenged Parents : The Struggles and Rewards of Raising a Child With a Disability
By Robert A. Naseef

"A traveler's guide to the emotional journey of parenting a child with special needs. This is a terrific book, which melds personal insight with psychological theory on coming to terms with your child's disabilities and caring for their special needs."

Preemies : The Essential Guide for Parents of Premature Babies
by Dana Wechsler Linden, Emma Trenti Paroli, Mia Wechsler Doron M.D.

"Preemies is one of the most comprehensive books for parents of preemies currently available. With over 500 well written pages on preemies and their care, this book will provide the answers to many of the questions you seek as the parent of a new baby or an older preemie toddler."

The Premature Baby Book : A Parent's Guide to Coping and Caring in the First Years
Helen Harrison, Ann Kositsky

"Since 1983, Helen Harrisons "The Premature Baby Book" has been the premier guide for parents as they cope with their premature baby's birth and subsequent stay in the hospitals Neonatal Intensive Care Unit (NICU)."

Living Miracles : Stories of Hope from Parents of Premature Babies
by Kimberly A. Powell & Kim Wilson

"An indepth and personal view into the life of premature babies and their families. The dramatic stories of preemies of different gestational age unfold in this eloquent volume of true life stories."

Born Too Soon
by Elizabeth Mehren

"The touching, true story of the short life of a fragile but heroic preemie, as told by her mother."

The Silent Cries of a HELLP Syndrome Baby
By John & Rebecca Knox
"Jackson was born very prematurely (24 weeks gestation) due to complications caused by HELLP. The Knox's use their personal story to inform others about the devastating impact of this apparently underdiagnosed condition."

Newborn Intensive Care : What Every Parent Needs to Know
By Jeanette Zaichkin (Editor)

"An easy to understand and comprehensive book on prematurity and the care of your child in the NICU.";

You Are Not Alone : The NICU Experience
Children's Medical Ventures, Inc.
"Parents share the stories of their children born prematurely. Wonderful photographs and touching stories."

Planet of the Blind
By Stephen Kuusisto
"The compelling autobiography of Stephen Kuusisto, who is blind as a consequence of his premature birth."

Drawings from the Newborn : Poems and Drawings of Infants in Crisis
by Heather Spears
"Delicate pencil illustrations bring into our hearts the tiny beings who inhabit the NICU. This collection of portraits of premature babies and sick infants in the Copenhagen NICU is a touching memorial to preemies everywhere." (Allison Martin)

Your Premature Baby : Everything You Need to Know About Childbirth, Treatment, and Parenting.
Frank P. Manginello, Theresa Foy Digeronimo

"An excellent introduction for the new parent to the overwhelming and often frightening environment of the NICU."

Special Needs Books

Where's the Evidence? : Debates in Modern Medicine
By William A. Silverman
"A collection of essays written by William A. Silverman, a pioneer in neonatology who is well regarded for conducting one of the most important randomized control trials in medicine. He has truly mastered the art of explaining the most complex and critical issues in medicine in terms that are understandable, and useful to the public at large." (Suzanne Calpestri)

Breast Feeding Your Premature Baby
by Gwen Gotsch

"Mother's milk has been scientifically proven to help babies born premature in so many ways. I wish these studies had been available when our baby was born more than 10 years ago."

My Special Start
A 45 page journal for parents who have a baby in the NICU. Designed to help you capture early memories & celebrate the accomplishments towards going home.

Pediatric Massage : For the Child With Special Needs
by Kathy Fleming Drehobl, Mary Gengler Fuhr
"Over-reaction to touch and other stimulus is a common problem for preemie babies, which may continue on into child and adulthood. A detailed guide to infant massage.

The NICU Notebook, A Parent's Journal
Maureen A. Doolan Boyle

"Giving birth prematurely is an overwhelming, life changing experience; it is all the more overwhelming if you have more than one premature baby. The NICU Notebook provides a format for organizing the experiences of you and your baby during this traumatic but crucial time in the NICU." (Allison Martin)

Miracle Birth Stories of Very Premature Babies : Little Thumbs Up!
by Timothy Smith

"Personal stories of children born premature."

Caring for Your Premature Baby : A Complete Resource for Parents
by Alan H. Klein, Jill Alison Ganon

Born Early : A Premature Baby's Story
by Lida Lafferty

"The personal story of a premature baby and her family".

Watching Bradley Grow : A Story About Premature Birth
by Elizabeth Murphy-Melas

"For parents of preemies to share with their older children. This big sister learns to cope with her brother's premature birth."For ages 4-8.

Waiting for Baby Joe
by Pat Lowery Collins

"Photographs illustrate this story of the reaction and adjustment of an older sister to new baby brother, who was born premature."For ages 4-8.